Monday, April 27, 2015

Noel Scally to participate in NYC Marathon

Noel Scally wrote: "I will participate in the New York City Marathon in November 2015 in order to fundraise for the Billy’s World Ireland Charity.  I would be delighted with any sponsorship or support to help me reach my fundraising target of €4500.  I have set up a fundraising page on the mycharity.ie website so if anyone would like to make a donation please do or alternatively contact me directly on 087 222 8466.  Thank you in advance.

http://www.mycharity.ie/event/noel_scallys_event/

Billy’s World Ireland is a new charity set up with the purpose of building a wonderful adventure theme park for families of children with special needs and their siblings – a place for the whole family to enjoy, together. This park will serve as a recreation, enjoyment, holiday centre, a seminar and network facility to so many families. The park will offer those families so hard pressed with caring for their child, with whatever condition, a chance to have a holiday the entire family can enjoy together. It will also act as an information centre with seminars and lectures on various conditions and syndromes as well as acting as a host for events for many other charities. 

The man behind this amazing vision is Tony Byrne from the Boyle Road in Carrick-on-Shannon who lost his son Billy (whom the park is named after) when he passed away on March 24th, 2013, just one week short of his sixth birthday. Billy had been diagnosed with Pallister Killian Syndrome (PKS), a very rare chromosomal disorder at 13 months of age. Billy was one of only three children in Ireland with PKS at the time. Tony and his family had found it nearly impossible to take holidays together as a family as nowhere catered for Billy as well as his siblings. So, with the tragic passing of Billy, Tony has made it his life’s purpose to give other families the opportunity that was denied to him and his family – and so was born the Billy’s World Ireland Project!"