Join Our Boys Trust

The Join Our Boys Trust was set up just over two months ago to support the Naughton family from Roscommon whose three boys were diagnosed with Duchenne Muscular Dystrophy (DMD).  A diagnosis of DMD is devastating. It is a 100% fatal, neuromuscular disease where life expectancy is late teens or early twenties. As the disease progresses, muscle tissue will experience wasting and will eventually be replaced by fat and fibrotic tissue. This will lead to extreme difficulties in walking and will eventually lead sufferers to being wheelchair dependant between the ages of eight and twelve. At present, there is no treatment and no cure.

The immediate purpose of the fundraising is to provide a purpose-built house for the family’s use. Indeed, one of the principles of the Trust is that all the money raised and the proposed house will remain in the ownership of the Trust but will be for the family’s use.

The Trust hope to raise 1.2 million and spread awareness about Duchenne Muscular Dystrophy and ultimately try to find a cure.

The people of County Roscommon and beyond are showing tremendous support for the family and the Trust. Many fundraising events have already taken place and plenty more are being planned. A monster draw, where the first prize is a car, has been launched and this is promising to be an outstanding success.

A Variety Concert featuring an array of local artists will be held in St. Joseph’s Hall, Boyle on Saturday the 7^th June at 8.30 p.m. in support of the Join our Boys Trust.  Your support for this fundraiser would be greatly appreciated.  For further information see www.joinourboys.org